Dear family and friends, I know that you are concerned about my physical and mental health and would appreciate occasional updates. You may not know of my ALS diagnosis that was just made in March, which was unsettling. I then considered pulling out of the ACCA May “Farewell” concert because I was afraid that I might not make it through. However, I am now pleased that I stayed in there with my chorale and orchestra, and completed that concert. If you would like a recording of that spectacular concert, let me know.

Now to specifics about my health:

I am now on medication that will help slow down physical deterioration. What a relief. I have serious mobility issues mostly about climbing stairs, but my physical health seems a little steadier. My legs, especially my left leg, are weak, and climbing too many stairs wears me down. But rather than quitting exercising, I exercise most mornings of the week, being careful to not to be over aggressive, which had always been my norm.

Now that ACCA responsibilities are over, I am concentrating on my “old” life as a church choir director where I am now at Trinity Presbyterian in Berwyn, PA. The congregation is becoming energized and enthusiastic. Janet and I are working on ways to enhance the church’s style to draw in younger adults and families. I am working with our music staff on ideas to rebuild our children’s choir program. Bottom line…I am feeling positive about being a part of that church. I wake up positive and creative.

When working on positive matters during the day, such as studying music, singing, playing violin, viola, and piano, composing, writing my life stories, and beginning more training books for choir directors, I rarely ever slip into worrying about my life. Almost every day is filled with joy. Please know that I have no pain with this ALS. Probably many victims have little to motivate them, but I have so much that I can’t possibly do it all.

Because of ALS-related speaking and singing issues, vocal issues that used to be natural now need careful concentration and attention. I therefore vocalize, both singing and speaking, every morning, checking posture, breath support, and tone placement.

I am staying in daily contact with VA doctors and ALS support professionals in Ambler, PA, one of whom has often sung under my baton. He is opening up many helpful doors.

Thoughts about my future? Rather than being obsessed with a potential shortness of life, I realize that I have so many positive activities and goals that I live day to day, concentrating on today and tomorrow rather than the unknown future. As long as I am doing good things for people, being creative, and using my gifts in a positive way, each day is a gift.

This brings you up to date with my health and mental attitude. Please know that I am aware of and appreciate your thoughts and prayers. Live one day at a time in a positive way.

Thoreau Paraphrase:

“Take time by the forelock. Launch yourself on every wave and make special things happen!”